Cataplexy
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is cataplexy?
Cataplexy is the sudden loss of muscle tone that is triggered by the experience of an intense emotion. Cataplexy is the result of an absence of a neurotransmitter in the hypothalamus known as hypocretin or orexin. It is often associated with narcolepsy but is seen in other pathological conditions.
Common symptoms reported by people with cataplexy
Treatments taken by people for cataplexy
Let’s build this page together! When you share what it’s like to have cataplexy through your profile, those stories and data appear here too.
Got a question about living with cataplexy? Members in the forum might have the answers.
Compare treatments taken by people with cataplexy
Let’s build this page together! When you share what it’s like to have cataplexy through your profile, those stories and data appear here too.
Got a question about living with cataplexy? Members in the forum might have the answers.
Who has cataplexy on PatientsLikeMe?
- 0 new patients joined this month
- 28 say cataplexy is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 8 | |
| 30s | 9 | |
| 40s | 13 | |
| 50s | 12 | |
| 60s | 11 | |
| 70+ | 33 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 11 | |
| 20-29 years | 8 | |
| 30-39 years | 9 | |
| 40-49 years | 5 | |
| 50-59 years | 9 | |
| 60-69 years | 3 | |
| 70+ years | 4 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 26 | |
| Female | 135 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 108 | |
| Not Diagnosed | 7 |