Chronic cerebrospinal venous insufficiency

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What is chronic cerebrospinal venous insufficiency?

Chronic cerebrospinal venous insufficiency (CCSVI) is a term used to describe compromised flow of blood in the veins draining the central nervous system.

Common symptoms reported by people with chronic cerebrospinal venous insufficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for chronic cerebrospinal venous insufficiency

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Compare treatments taken by people with chronic cerebrospinal venous insufficiency

Let’s build this page together! When you share what it’s like to have chronic cerebrospinal venous insufficiency through your profile, those stories and data appear here too.

Got a question about living with chronic cerebrospinal venous insufficiency? Members in the forum might have the answers.

Who has chronic cerebrospinal venous insufficiency on PatientsLikeMe?

  • 0 new patients joined this month
  • 10 say CCSVI is their primary condition

Age
Age Proportion # of patients
<20 0
20s 4
30s 4
40s 9
50s 10
60s 5
70+ 15
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 3
30-39 years 1
40-49 years 1
50-59 years 1
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 27
Female 54

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 29
Not Diagnosed 5

These charts show data from CCSVI patients who have completed their condition history
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