Myalgic encephalomyelitis/chronic fatigue syndrome
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is myalgic encephalomyelitis/chronic fatigue syndrome?
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.
Common symptoms reported by people with myalgic encephalomyelitis/chronic fatigue syndrome
Treatments taken by people for myalgic encephalomyelitis/chronic fatigue syndrome
Let’s build this page together! When you share what it’s like to have myalgic encephalomyelitis/chronic fatigue syndrome through your profile, those stories and data appear here too.
Got a question about living with myalgic encephalomyelitis/chronic fatigue syndrome? Members in the forum might have the answers.
Compare treatments taken by people with myalgic encephalomyelitis/chronic fatigue syndrome
Let’s build this page together! When you share what it’s like to have myalgic encephalomyelitis/chronic fatigue syndrome through your profile, those stories and data appear here too.
Got a question about living with myalgic encephalomyelitis/chronic fatigue syndrome? Members in the forum might have the answers.
Who has myalgic encephalomyelitis/chronic fatigue syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 4203 say ME/CFS is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 493 | |
| 30s | 1432 | |
| 40s | 1351 | |
| 50s | 1455 | |
| 60s | 1445 | |
| 70+ | 3661 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 753 | |
| 20-29 years | 450 | |
| 30-39 years | 472 | |
| 40-49 years | 494 | |
| 50-59 years | 436 | |
| 60-69 years | 327 | |
| 70+ years | 207 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1521 | |
| Female | 16802 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| Chronic fatigue immune dysfunction syndrome (CFIDS) | 650 | |
| Chronic fatigue syndrome (CFS) | 2037 | |
| Myalgic encephalomyelitis (ME) | 1038 | |
| Neuroendocrine immune disorder | 166 | |
| Post-viral fatigue syndrome (PVFS) | 354 | |
| Systemic exertion intolerance disease (SEID) | 54 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 8440 | |
| Not Diagnosed | 3851 |