Chiari malformation

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What is Chiari malformation?

Chiari malformation is a malformation of the brain that causes structural defects in the cerebellum, the part of the brain that controls balance. It can cause headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, and, in severe cases paralysis.

Common symptoms reported by people with Chiari malformation

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for Chiari malformation

Let’s build this page together! When you share what it’s like to have Chiari malformation through your profile, those stories and data appear here too.

Got a question about living with Chiari malformation? Members in the forum might have the answers.

Compare treatments taken by people with Chiari malformation

Let’s build this page together! When you share what it’s like to have Chiari malformation through your profile, those stories and data appear here too.

Got a question about living with Chiari malformation? Members in the forum might have the answers.

Who has Chiari malformation on PatientsLikeMe?

  • 0 new patients joined this month
  • 333 say Chiari malformation is their primary condition

Age
Age Proportion # of patients
<20 0
20s 17
30s 52
40s 35
50s 46
60s 40
70+ 108
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 29
20-29 years 18
30-39 years 24
40-49 years 14
50-59 years 10
60-69 years 12
70+ years 8

Distribution of sex

Sex
Sex Proportion # of patients
Male 65
Female 525

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 348
Not Diagnosed 9

These charts show data from Chiari malformation patients who have completed their condition history
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