Cluster headaches

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What is cluster headaches?

A primary headache disorder characterized by severe one-sided pain in and around the eyes and/or temples. They can last from 15 minutes to many hours occurring 1 to 8 times a day. They are often associated with conjunctivitis, teary eyes, nasal congestion, facial sweating, and eyelid edema.

Common symptoms reported by people with cluster headaches

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for cluster headaches

Let’s build this page together! When you share what it’s like to have cluster headaches through your profile, those stories and data appear here too.

Got a question about living with cluster headaches? Members in the forum might have the answers.

Compare treatments taken by people with cluster headaches

Let’s build this page together! When you share what it’s like to have cluster headaches through your profile, those stories and data appear here too.

Got a question about living with cluster headaches? Members in the forum might have the answers.

Who has cluster headaches on PatientsLikeMe?

  • 0 new patients joined this month
  • 674 say cluster headaches is their primary condition

Age
Age Proportion # of patients
<20 0
20s 39
30s 100
40s 98
50s 105
60s 100
70+ 267
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 76
20-29 years 44
30-39 years 45
40-49 years 49
50-59 years 33
60-69 years 20
70+ years 23

Distribution of sex

Sex
Sex Proportion # of patients
Male 421
Female 917

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 642
Not Diagnosed 101

These charts show data from cluster headaches patients who have completed their condition history
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