CNS lupus
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is CNS lupus?
Central nervous system (CNS) lupus refers to several different neurological and/or behavioral clinical syndromes in patients with systemic lupus erythematosus (SLE). The brain and spinal cord may be affected with a variety of presentations from mild cognitive dysfunction to seizures, stroke or coma.
Common symptoms reported by people with CNS lupus
Treatments taken by people for CNS lupus
Let’s build this page together! When you share what it’s like to have CNS lupus through your profile, those stories and data appear here too.
Got a question about living with CNS lupus? Members in the forum might have the answers.
Compare treatments taken by people with CNS lupus
Let’s build this page together! When you share what it’s like to have CNS lupus through your profile, those stories and data appear here too.
Got a question about living with CNS lupus? Members in the forum might have the answers.
Who has CNS lupus on PatientsLikeMe?
- 0 new patients joined this month
- 134 say CNS lupus is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 40 | |
| 30s | 134 | |
| 40s | 112 | |
| 50s | 155 | |
| 60s | 123 | |
| 70+ | 343 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 8 | |
| 20-29 years | 5 | |
| 30-39 years | 6 | |
| 40-49 years | 4 | |
| 50-59 years | 8 | |
| 60-69 years | 10 | |
| 70+ years | 10 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 70 | |
| Female | 1730 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 128 | |
| Not Diagnosed | 44 |