CREST syndrome
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What is CREST syndrome?
CREST Syndrome is a form of scleroderma that is characterized by least two of the following symptoms: calcinosis, Raynaud's phenomenon, esophageal dysfunction, sclerodactyly, telangiectasia.
Common symptoms reported by people with CREST syndrome
Treatments taken by people for CREST syndrome
Let’s build this page together! When you share what it’s like to have CREST syndrome through your profile, those stories and data appear here too.
Got a question about living with CREST syndrome? Members in the forum might have the answers.
Compare treatments taken by people with CREST syndrome
Let’s build this page together! When you share what it’s like to have CREST syndrome through your profile, those stories and data appear here too.
Got a question about living with CREST syndrome? Members in the forum might have the answers.
Who has CREST syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 91 say CREST syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 9 | |
| 40s | 15 | |
| 50s | 12 | |
| 60s | 7 | |
| 70+ | 25 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 4 | |
| 30-39 years | 4 | |
| 40-49 years | 3 | |
| 50-59 years | 1 | |
| 60-69 years | 3 | |
| 70+ years | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 12 | |
| Female | 116 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 48 | |
| Not Diagnosed | 2 |