Cushing's syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Cushing's syndrome?

Cushing’s syndrome is a hormonal disorder caused by prolonged exposure of the body’s tissues to high levels of the hormone cortisol. The most common cause of the syndrome is Cushing's disease which is due to excess production of the hormone ACTH by the pituitary gland.

Common symptoms reported by people with Cushing's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Cushing's syndrome

Let’s build this page together! When you share what it’s like to have Cushing's syndrome through your profile, those stories and data appear here too.

Got a question about living with Cushing's syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Cushing's syndrome

Let’s build this page together! When you share what it’s like to have Cushing's syndrome through your profile, those stories and data appear here too.

Got a question about living with Cushing's syndrome? Members in the forum might have the answers.

Who has Cushing's syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 91 say Cushing's syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 7
30s 17
40s 8
50s 14
60s 17
70+ 36
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 8
30-39 years 5
40-49 years 7
50-59 years 3
60-69 years 6
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 22
Female 164

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 80
Not Diagnosed 12

These charts show data from Cushing's syndrome patients who have completed their condition history
Last updated: