Cystic fibrosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is cystic fibrosis?
Cystic fibrosis is a rare genetic condition in which certain glands produce abnormally thick mucus. This mucus can cause problems in digestion, breathing, and body cooling. There are over 1900 known mutations that can cause CF. Treatments may include specific drugs and lifestyle changes.
Common symptoms reported by people with cystic fibrosis
Treatments taken by people for cystic fibrosis
Let’s build this page together! When you share what it’s like to have cystic fibrosis through your profile, those stories and data appear here too.
Got a question about living with cystic fibrosis? Members in the forum might have the answers.
Compare treatments taken by people with cystic fibrosis
Let’s build this page together! When you share what it’s like to have cystic fibrosis through your profile, those stories and data appear here too.
Got a question about living with cystic fibrosis? Members in the forum might have the answers.
Who has cystic fibrosis on PatientsLikeMe?
- 0 new patients joined this month
- 1199 say cystic fibrosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 38 | |
| 30s | 109 | |
| 40s | 90 | |
| 50s | 94 | |
| 60s | 92 | |
| 70+ | 243 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 61 | |
| 20-29 years | 43 | |
| 30-39 years | 37 | |
| 40-49 years | 35 | |
| 50-59 years | 17 | |
| 60-69 years | 15 | |
| 70+ years | 7 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 366 | |
| Female | 795 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 720 | |
| Not Diagnosed | 20 |