Dercum's disease

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What is Dercum's disease?

Dercum’s disease, also known as adiposis dolorosa, is a rare disorder characterized by multiple, painful growths consisting of fatty tissue, called lipomas. They mainly occur on the trunk, the upper arms and upper legs and are found just below the skin.

Common symptoms reported by people with Dercum's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for Dercum's disease

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Got a question about living with Dercum's disease? Members in the forum might have the answers.

Compare treatments taken by people with Dercum's disease

Let’s build this page together! When you share what it’s like to have Dercum's disease through your profile, those stories and data appear here too.

Got a question about living with Dercum's disease? Members in the forum might have the answers.

Who has Dercum's disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 119 say Dercum's disease is their primary condition

Age
Age Proportion # of patients
<20 0
20s 3
30s 14
40s 13
50s 7
60s 11
70+ 26
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 4
30-39 years 0
40-49 years 6
50-59 years 3
60-69 years 6
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 13
Female 124

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 46
Not Diagnosed 16

These charts show data from Dercum's disease patients who have completed their condition history
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