Dermatomyositis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is dermatomyositis?
Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness. The cardinal symptom is a skin rash that precedes, accompanies, or follows progressive muscle weakness.
Common symptoms reported by people with dermatomyositis
Treatments taken by people for dermatomyositis

Let’s build this page together! When you share what it’s like to have dermatomyositis through your profile, those stories and data appear here too.
Got a question about living with dermatomyositis? Members in the forum might have the answers.
Compare treatments taken by people with dermatomyositis

Let’s build this page together! When you share what it’s like to have dermatomyositis through your profile, those stories and data appear here too.
Got a question about living with dermatomyositis? Members in the forum might have the answers.
Who has dermatomyositis on PatientsLikeMe?
- 0 new patients joined this month
- 194 say dermatomyositis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 3 | |
| 30s | 26 | |
| 40s | 23 | |
| 50s | 16 | |
| 60s | 18 | |
| 70+ | 62 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 5 | |
| 20-29 years | 10 | |
| 30-39 years | 7 | |
| 40-49 years | 5 | |
| 50-59 years | 5 | |
| 60-69 years | 8 | |
| 70+ years | 9 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 22 | |
| Female | 224 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 99 | |
| Not Diagnosed | 9 |