Dermatomyositis

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What is dermatomyositis?

Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness. The cardinal symptom is a skin rash that precedes, accompanies, or follows progressive muscle weakness.

Common symptoms reported by people with dermatomyositis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for dermatomyositis

Let’s build this page together! When you share what it’s like to have dermatomyositis through your profile, those stories and data appear here too.

Got a question about living with dermatomyositis? Members in the forum might have the answers.

Compare treatments taken by people with dermatomyositis

Let’s build this page together! When you share what it’s like to have dermatomyositis through your profile, those stories and data appear here too.

Got a question about living with dermatomyositis? Members in the forum might have the answers.

Who has dermatomyositis on PatientsLikeMe?

  • 0 new patients joined this month
  • 194 say dermatomyositis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 3
30s 26
40s 23
50s 16
60s 18
70+ 62
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 10
30-39 years 7
40-49 years 5
50-59 years 5
60-69 years 8
70+ years 9

Distribution of sex

Sex
Sex Proportion # of patients
Male 22
Female 224

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 99
Not Diagnosed 9

These charts show data from dermatomyositis patients who have completed their condition history
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