Duchenne muscular dystrophy
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Duchenne muscular dystrophy?
Muscular dystrophies are a group of genetic conditions characterized by progressive muscle weakness and wasting (atrophy). The Duchenne type is the most prevalent type of muscular dystrophy primarily affecting the skeletal muscles, which are used for movement, and the muscles of the heart.
Common symptoms reported by people with Duchenne muscular dystrophy
Treatments taken by people for Duchenne muscular dystrophy

Let’s build this page together! When you share what it’s like to have Duchenne muscular dystrophy through your profile, those stories and data appear here too.
Got a question about living with Duchenne muscular dystrophy? Members in the forum might have the answers.
Compare treatments taken by people with Duchenne muscular dystrophy

Let’s build this page together! When you share what it’s like to have Duchenne muscular dystrophy through your profile, those stories and data appear here too.
Got a question about living with Duchenne muscular dystrophy? Members in the forum might have the answers.
Who has Duchenne muscular dystrophy on PatientsLikeMe?
- 0 new patients joined this month
- 65 say Duchenne muscular dystrophy is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 6 | |
| 40s | 5 | |
| 50s | 4 | |
| 60s | 3 | |
| 70+ | 21 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 1 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 51 | |
| Female | 10 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 12 | |
| Not Diagnosed | 4 |