Dysautonomia
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is dysautonomia?
Dysautonomia is a broad term that describes any disease or malfunction of the autonomic nervous system. It can be local, as in reflex sympathetic dystrophy, or generalized, as in pure autonomic failure. It can be acute and reversible, as in Guillain-Barre syndrome, or chronic and progressive.
Common symptoms reported by people with dysautonomia
Treatments taken by people for dysautonomia
Let’s build this page together! When you share what it’s like to have dysautonomia through your profile, those stories and data appear here too.
Got a question about living with dysautonomia? Members in the forum might have the answers.
Compare treatments taken by people with dysautonomia
Let’s build this page together! When you share what it’s like to have dysautonomia through your profile, those stories and data appear here too.
Got a question about living with dysautonomia? Members in the forum might have the answers.
Who has dysautonomia on PatientsLikeMe?
- 0 new patients joined this month
- 183 say dysautonomia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 19 | |
| 30s | 30 | |
| 40s | 27 | |
| 50s | 45 | |
| 60s | 46 | |
| 70+ | 113 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 29 | |
| 20-29 years | 15 | |
| 30-39 years | 25 | |
| 40-49 years | 18 | |
| 50-59 years | 22 | |
| 60-69 years | 20 | |
| 70+ years | 18 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 52 | |
| Female | 477 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 315 | |
| Not Diagnosed | 45 |