Ehlers-Danlos syndrome
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What is Ehlers-Danlos syndrome?
Ehlers-Danlos syndrome is a group of disorders that affect connective tissues, which are tissues that support the skin, bones, blood vessels, and other organs. All types of Ehler-Danlos syndrome affect the joints and many also affect the skin.
Common symptoms reported by people with Ehlers-Danlos syndrome
Treatments taken by people for Ehlers-Danlos syndrome
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Got a question about living with Ehlers-Danlos syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Ehlers-Danlos syndrome
Let’s build this page together! When you share what it’s like to have Ehlers-Danlos syndrome through your profile, those stories and data appear here too.
Got a question about living with Ehlers-Danlos syndrome? Members in the forum might have the answers.
Who has Ehlers-Danlos syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 943 say Ehlers-Danlos syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 37 | |
| 30s | 93 | |
| 40s | 105 | |
| 50s | 102 | |
| 60s | 93 | |
| 70+ | 273 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 104 | |
| Female | 1227 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| Arthrochalasia | 2 | |
| Brittle Cornea Syndrome | 0 | |
| Cardiac-valvular | 2 | |
| Classical | 4 | |
| Classical-like | 6 | |
| Dermatosparaxis | 0 | |
| Hypermobile | 57 | |
| Kyphoscoliotic | 1 | |
| Musculocontractual | 1 | |
| Myopathic | 3 | |
| Periodontal | 2 | |
| Spondylodysplastic | 2 | |
| Vascular | 4 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 734 | |
| Not Diagnosed | 103 |