Endometriosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is endometriosis?
Endometriosis is a condition in which the tissue that behaves like the cells lining the uterus (endometrium) grows in other areas of the body. The tissue growth typically occurs in the pelvic area, outside of the uterus, on the ovaries, bowel, rectum, bladder, and the delicate lining of the pelvis.
Common symptoms reported by people with endometriosis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for endometriosis
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Compare treatments taken by people with endometriosis
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Who has endometriosis on PatientsLikeMe?
- 0 new patients joined this month
- 642 say endometriosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 59 | |
| 30s | 180 | |
| 40s | 143 | |
| 50s | 170 | |
| 60s | 186 | |
| 70+ | 404 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 179 | |
| 20-29 years | 96 | |
| 30-39 years | 98 | |
| 40-49 years | 93 | |
| 50-59 years | 72 | |
| 60-69 years | 65 | |
| 70+ years | 32 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 16 | |
| Female | 2129 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 1638 | |
| Not Diagnosed | 110 |
These charts show data from endometriosis patients who have completed their condition history
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