Epilepsy

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Letitia explains in this video.

What is epilepsy?

A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.

Common symptoms reported by people with epilepsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for epilepsy

Let’s build this page together! When you share what it’s like to have epilepsy through your profile, those stories and data appear here too.

Got a question about living with epilepsy? Members in the forum might have the answers.

Compare treatments taken by people with epilepsy

Let’s build this page together! When you share what it’s like to have epilepsy through your profile, those stories and data appear here too.

Got a question about living with epilepsy? Members in the forum might have the answers.

Who has epilepsy on PatientsLikeMe?

  • 0 new patients joined this month
  • 10106 say epilepsy is their primary condition

Age
Age Proportion # of patients
<20 0
20s 297
30s 807
40s 921
50s 819
60s 876
70+ 2212
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 573
20-29 years 365
30-39 years 315
40-49 years 284
50-59 years 251
60-69 years 181
70+ years 107

Distribution of sex

Sex
Sex Proportion # of patients
Male 3258
Female 7134

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6047
Not Diagnosed 180

These charts show data from epilepsy patients who have completed their condition history
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