Epilepsy
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as member Letitia explains in this video.
What is epilepsy?
A group of disorders marked by problems in the normal functioning of the brain. These problems can produce seizures, unusual body movements, a loss of consciousness or changes in consciousness, as well as mental problems or problems with the senses.
Common symptoms reported by people with epilepsy
Treatments taken by people for epilepsy

Let’s build this page together! When you share what it’s like to have epilepsy through your profile, those stories and data appear here too.
Got a question about living with epilepsy? Members in the forum might have the answers.
Compare treatments taken by people with epilepsy

Let’s build this page together! When you share what it’s like to have epilepsy through your profile, those stories and data appear here too.
Got a question about living with epilepsy? Members in the forum might have the answers.
Who has epilepsy on PatientsLikeMe?
- 0 new patients joined this month
- 10106 say epilepsy is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 297 | |
| 30s | 807 | |
| 40s | 921 | |
| 50s | 819 | |
| 60s | 876 | |
| 70+ | 2212 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 573 | |
| 20-29 years | 365 | |
| 30-39 years | 315 | |
| 40-49 years | 284 | |
| 50-59 years | 251 | |
| 60-69 years | 181 | |
| 70+ years | 107 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3258 | |
| Female | 7134 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 6047 | |
| Not Diagnosed | 180 |