Facioscapulohumeral muscular dystrophy
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What is facioscapulohumeral muscular dystrophy?
Facioscapulohumeral muscular dystrophy An autosomal dominant disorder affecting the skeletal muscles of the face, scapula, and upper arm characterized by muscle weakness in these anatomic areas. The muscle weakness eventually spreads to other skeletal muscles as well.
Common symptoms reported by people with facioscapulohumeral muscular dystrophy
Treatments taken by people for facioscapulohumeral muscular dystrophy

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Compare treatments taken by people with facioscapulohumeral muscular dystrophy

Let’s build this page together! When you share what it’s like to have facioscapulohumeral muscular dystrophy through your profile, those stories and data appear here too.
Got a question about living with facioscapulohumeral muscular dystrophy? Members in the forum might have the answers.
Who has facioscapulohumeral muscular dystrophy on PatientsLikeMe?
- 0 new patients joined this month
- 54 say facioscapulohumeral muscular dystrophy is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 3 | |
| 40s | 8 | |
| 50s | 6 | |
| 60s | 7 | |
| 70+ | 13 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 6 | |
| 20-29 years | 6 | |
| 30-39 years | 1 | |
| 40-49 years | 2 | |
| 50-59 years | 2 | |
| 60-69 years | 0 | |
| 70+ years | 2 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 28 | |
| Female | 29 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 32 | |
| Not Diagnosed | 1 |