Hypoplastic left heart syndrome
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is hypoplastic left heart syndrome?
Hypoplastic left heart syndrome is a rare type of congenital heart disease. It occurs when parts of the left side of the heart, which includes the mitral valve, left ventricle, aortic valve and aorta, do not develop completely.
Common symptoms reported by people with hypoplastic left heart syndrome
Treatments taken by people for hypoplastic left heart syndrome

Let’s build this page together! When you share what it’s like to have hypoplastic left heart syndrome through your profile, those stories and data appear here too.
Got a question about living with hypoplastic left heart syndrome? Members in the forum might have the answers.
Compare treatments taken by people with hypoplastic left heart syndrome

Let’s build this page together! When you share what it’s like to have hypoplastic left heart syndrome through your profile, those stories and data appear here too.
Got a question about living with hypoplastic left heart syndrome? Members in the forum might have the answers.
Who has hypoplastic left heart syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 17 say hypoplastic left heart syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 2 | |
| 40s | 5 | |
| 50s | 1 | |
| 60s | 0 | |
| 70+ | 6 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 17 | |
| Female | 11 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 10 | |
| Not Diagnosed | 2 |