Idiopathic hypersomnia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is idiopathic hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

Common symptoms reported by people with idiopathic hypersomnia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for idiopathic hypersomnia

Let’s build this page together! When you share what it’s like to have idiopathic hypersomnia through your profile, those stories and data appear here too.

Got a question about living with idiopathic hypersomnia? Members in the forum might have the answers.

Compare treatments taken by people with idiopathic hypersomnia

Let’s build this page together! When you share what it’s like to have idiopathic hypersomnia through your profile, those stories and data appear here too.

Got a question about living with idiopathic hypersomnia? Members in the forum might have the answers.

Who has idiopathic hypersomnia on PatientsLikeMe?

  • 0 new patients joined this month
  • 228 say idiopathic hypersomnia is their primary condition

Age
Age Proportion # of patients
<20 0
20s 13
30s 36
40s 39
50s 29
60s 29
70+ 92
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 23
20-29 years 11
30-39 years 10
40-49 years 12
50-59 years 16
60-69 years 9
70+ years 8

Distribution of sex

Sex
Sex Proportion # of patients
Male 78
Female 380

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 245
Not Diagnosed 27

These charts show data from idiopathic hypersomnia patients who have completed their condition history
Last updated: