Interstitial cystitis
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What is interstitial cystitis?
Interstitial cystitis, also known as painful bladder syndrome, is a non-infectious condition with recurring discomfort or pain in the urinary bladder and the surrounding pelvic region without an identifiable disease.
Common symptoms reported by people with interstitial cystitis
Treatments taken by people for interstitial cystitis
Let’s build this page together! When you share what it’s like to have interstitial cystitis through your profile, those stories and data appear here too.
Got a question about living with interstitial cystitis? Members in the forum might have the answers.
Compare treatments taken by people with interstitial cystitis
Let’s build this page together! When you share what it’s like to have interstitial cystitis through your profile, those stories and data appear here too.
Got a question about living with interstitial cystitis? Members in the forum might have the answers.
Who has interstitial cystitis on PatientsLikeMe?
- 0 new patients joined this month
- 509 say interstitial cystitis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 47 | |
| 30s | 102 | |
| 40s | 99 | |
| 50s | 125 | |
| 60s | 113 | |
| 70+ | 290 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 83 | |
| 20-29 years | 44 | |
| 30-39 years | 41 | |
| 40-49 years | 58 | |
| 50-59 years | 38 | |
| 60-69 years | 39 | |
| 70+ years | 28 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 61 | |
| Female | 1379 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 833 | |
| Not Diagnosed | 48 |