Interstitial lung disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is interstitial lung disease?

Interstitial lung disease is the name for a large group of diseases that inflame or scar the lungs. The inflammation and scarring make it hard to get enough oxygen. The scarring is called pulmonary fibrosis. Some types of interstitial lung disease have no known cause.

Common symptoms reported by people with interstitial lung disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for interstitial lung disease

Let’s build this page together! When you share what it’s like to have interstitial lung disease through your profile, those stories and data appear here too.

Got a question about living with interstitial lung disease? Members in the forum might have the answers.

Compare treatments taken by people with interstitial lung disease

Let’s build this page together! When you share what it’s like to have interstitial lung disease through your profile, those stories and data appear here too.

Got a question about living with interstitial lung disease? Members in the forum might have the answers.

Who has interstitial lung disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 364 say interstitial lung disease is their primary condition

Age
Age Proportion # of patients
<20 0
20s 17
30s 40
40s 48
50s 50
60s 48
70+ 112
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 16
20-29 years 10
30-39 years 10
40-49 years 16
50-59 years 10
60-69 years 12
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 148
Female 421

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 246
Not Diagnosed 7

These charts show data from interstitial lung disease patients who have completed their condition history
Last updated: