Interstitial lung disease
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is interstitial lung disease?
Interstitial lung disease is the name for a large group of diseases that inflame or scar the lungs. The inflammation and scarring make it hard to get enough oxygen. The scarring is called pulmonary fibrosis. Some types of interstitial lung disease have no known cause.
Common symptoms reported by people with interstitial lung disease
Treatments taken by people for interstitial lung disease

Let’s build this page together! When you share what it’s like to have interstitial lung disease through your profile, those stories and data appear here too.
Got a question about living with interstitial lung disease? Members in the forum might have the answers.
Compare treatments taken by people with interstitial lung disease

Let’s build this page together! When you share what it’s like to have interstitial lung disease through your profile, those stories and data appear here too.
Got a question about living with interstitial lung disease? Members in the forum might have the answers.
Who has interstitial lung disease on PatientsLikeMe?
- 0 new patients joined this month
- 364 say interstitial lung disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 17 | |
| 30s | 40 | |
| 40s | 48 | |
| 50s | 50 | |
| 60s | 48 | |
| 70+ | 112 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 16 | |
| 20-29 years | 10 | |
| 30-39 years | 10 | |
| 40-49 years | 16 | |
| 50-59 years | 10 | |
| 60-69 years | 12 | |
| 70+ years | 18 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 148 | |
| Female | 421 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 246 | |
| Not Diagnosed | 7 |