Idiopathic pulmonary arterial hypertension

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What is idiopathic pulmonary arterial hypertension?

Idiopathic Pulmonary Arterial Hypertension (IPAH) is a rare progressive disease characterized by abnormally high blood pressure (hypertension) in the pulmonary artery, the blood vessel that carries blood from the heart to the lungs.

Common symptoms reported by people with idiopathic pulmonary arterial hypertension

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for idiopathic pulmonary arterial hypertension

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Compare treatments taken by people with idiopathic pulmonary arterial hypertension

Let’s build this page together! When you share what it’s like to have idiopathic pulmonary arterial hypertension through your profile, those stories and data appear here too.

Got a question about living with idiopathic pulmonary arterial hypertension? Members in the forum might have the answers.

Who has idiopathic pulmonary arterial hypertension on PatientsLikeMe?

  • 0 new patients joined this month
  • 81 say IPAH is their primary condition

Age
Age Proportion # of patients
<20 0
20s 3
30s 9
40s 10
50s 17
60s 13
70+ 24
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 3
30-39 years 4
40-49 years 1
50-59 years 1
60-69 years 4
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 31
Female 105

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 61
Not Diagnosed 1

These charts show data from IPAH patients who have completed their condition history
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