Langerhans cell histiocytosis
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What is Langerhans cell histiocytosis?
Langerhans cell histiocytosis, which is also called histiocytosis X, is a condition in which there is an abnormal increase in the number of immune cells called histiocytes. It often affects the whole body. When isolated to the lungs it is known as pulmonary histiocytosis X.
Common symptoms reported by people with Langerhans cell histiocytosis
Treatments taken by people for Langerhans cell histiocytosis
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Compare treatments taken by people with Langerhans cell histiocytosis
Let’s build this page together! When you share what it’s like to have Langerhans cell histiocytosis through your profile, those stories and data appear here too.
Got a question about living with Langerhans cell histiocytosis? Members in the forum might have the answers.
Who has Langerhans cell histiocytosis on PatientsLikeMe?
- 0 new patients joined this month
- 47 say Langerhans cell histiocytosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 2 | |
| 40s | 8 | |
| 50s | 4 | |
| 60s | 6 | |
| 70+ | 10 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 1 | |
| 30-39 years | 2 | |
| 40-49 years | 1 | |
| 50-59 years | 2 | |
| 60-69 years | 0 | |
| 70+ years | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 20 | |
| Female | 30 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 19 | |
| Not Diagnosed | 0 |