Lyme disease
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Lyme disease?
Lyme Disease is caused by Borrelia burgdorferi. Early manifestations of infection may include fever, headache, fatigue, depression, and a characteristic skin rash called erythema migrans. Left untreated, late manifestations involving the joints, heart, and nervous system can occur.
Common symptoms reported by people with Lyme disease
Treatments taken by people for Lyme disease

Let’s build this page together! When you share what it’s like to have Lyme disease through your profile, those stories and data appear here too.
Got a question about living with Lyme disease? Members in the forum might have the answers.
Compare treatments taken by people with Lyme disease

Let’s build this page together! When you share what it’s like to have Lyme disease through your profile, those stories and data appear here too.
Got a question about living with Lyme disease? Members in the forum might have the answers.
Who has Lyme disease on PatientsLikeMe?
- 0 new patients joined this month
- 1239 say Lyme disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 55 | |
| 30s | 137 | |
| 40s | 134 | |
| 50s | 134 | |
| 60s | 125 | |
| 70+ | 355 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 75 | |
| 20-29 years | 49 | |
| 30-39 years | 52 | |
| 40-49 years | 46 | |
| 50-59 years | 41 | |
| 60-69 years | 36 | |
| 70+ years | 44 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 342 | |
| Female | 1360 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 764 | |
| Not Diagnosed | 85 |