Lymphedema
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is lymphedema?
Lymphedema is the accumulation of a fluid called lymph. The lymphatic system carries this fluid through lymph vessels and lymph nodes throughout the body. Swelling may occur when there is an increase in the amount of fluid or due to blockage that disrupts the normal flow.
Common symptoms reported by people with lymphedema
Treatments taken by people for lymphedema
Let’s build this page together! When you share what it’s like to have lymphedema through your profile, those stories and data appear here too.
Got a question about living with lymphedema? Members in the forum might have the answers.
Compare treatments taken by people with lymphedema
Let’s build this page together! When you share what it’s like to have lymphedema through your profile, those stories and data appear here too.
Got a question about living with lymphedema? Members in the forum might have the answers.
Who has lymphedema on PatientsLikeMe?
- 0 new patients joined this month
- 181 say lymphedema is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 30 | |
| 30s | 76 | |
| 40s | 72 | |
| 50s | 83 | |
| 60s | 82 | |
| 70+ | 192 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 14 | |
| 20-29 years | 13 | |
| 30-39 years | 14 | |
| 40-49 years | 20 | |
| 50-59 years | 17 | |
| 60-69 years | 17 | |
| 70+ years | 5 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 63 | |
| Female | 1032 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 287 | |
| Not Diagnosed | 17 |