Mast cell activation syndrome
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is mast cell activation syndrome?
Mast cell activation syndrome (MCAS) is a disorder characterized by episodes of symptoms related to hyper-reactivity of mast cells. Symptoms vary but may include hot flushing, stomach pain or nausea, lightheadness, heart palpitations, and more. Treatment for MCAS is not well established.
Common symptoms reported by people with mast cell activation syndrome
Treatments taken by people for mast cell activation syndrome
Let’s build this page together! When you share what it’s like to have mast cell activation syndrome through your profile, those stories and data appear here too.
Got a question about living with mast cell activation syndrome? Members in the forum might have the answers.
Compare treatments taken by people with mast cell activation syndrome
Let’s build this page together! When you share what it’s like to have mast cell activation syndrome through your profile, those stories and data appear here too.
Got a question about living with mast cell activation syndrome? Members in the forum might have the answers.
Who has mast cell activation syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 120 say mast cell activation syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 7 | |
| 30s | 19 | |
| 40s | 18 | |
| 50s | 24 | |
| 60s | 14 | |
| 70+ | 48 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 4 | |
| 20-29 years | 6 | |
| 30-39 years | 7 | |
| 40-49 years | 5 | |
| 50-59 years | 5 | |
| 60-69 years | 1 | |
| 70+ years | 6 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 24 | |
| Female | 208 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 77 | |
| Not Diagnosed | 23 |