Cutaneous T-cell lymphoma

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What is cutaneous T-cell lymphoma?

Cutaneous (skin) T-cell lymphomas are a group of non-Hodgkin's lymphomas primarily involving the skin and eventually involve lymph nodes, blood and other organs. Mycosis fungoides and Sezary's disease are the most common types of cutaneous T-cell lymphomas.

Common symptoms reported by people with cutaneous T-cell lymphoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for cutaneous T-cell lymphoma

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Got a question about living with cutaneous T-cell lymphoma? Members in the forum might have the answers.

Compare treatments taken by people with cutaneous T-cell lymphoma

Let’s build this page together! When you share what it’s like to have cutaneous T-cell lymphoma through your profile, those stories and data appear here too.

Got a question about living with cutaneous T-cell lymphoma? Members in the forum might have the answers.

Who has cutaneous T-cell lymphoma on PatientsLikeMe?

  • 0 new patients joined this month
  • 376 say cutaneous T-cell lymphoma is their primary condition

Age
Age Proportion # of patients
<20 0
20s 9
30s 28
40s 27
50s 31
60s 35
70+ 76
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 4
30-39 years 9
40-49 years 6
50-59 years 14
60-69 years 3
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 139
Female 230

Types
Condition Types Proportion # of patients
Mycosis fungoides 264
Sézary syndrome 21
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 249
Not Diagnosed 24

These charts show data from cutaneous T-cell lymphoma patients who have completed their condition history
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