Myotonia congenita
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What is myotonia congenita?
Myotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally.
Common symptoms reported by people with myotonia congenita
Treatments taken by people for myotonia congenita
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Compare treatments taken by people with myotonia congenita
Let’s build this page together! When you share what it’s like to have myotonia congenita through your profile, those stories and data appear here too.
Got a question about living with myotonia congenita? Members in the forum might have the answers.
Who has myotonia congenita on PatientsLikeMe?
- 0 new patients joined this month
- 64 say myotonia congenita is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 5 | |
| 30s | 5 | |
| 40s | 5 | |
| 50s | 5 | |
| 60s | 4 | |
| 70+ | 18 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 3 | |
| 20-29 years | 2 | |
| 30-39 years | 1 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 33 | |
| Female | 35 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 21 | |
| Not Diagnosed | 2 |