Narcolepsy
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is narcolepsy?
Narcolepsy is a condition characterized by recurrent, uncontrollable brief episodes of sleep and lapses in consciousness, often associated with hypnagogic hallucinations (seeing and hearing things as one is falling asleep), cataplexy (sudden loss of muscle tone) and sleep paralysis.
Common symptoms reported by people with narcolepsy
Treatments taken by people for narcolepsy
Let’s build this page together! When you share what it’s like to have narcolepsy through your profile, those stories and data appear here too.
Got a question about living with narcolepsy? Members in the forum might have the answers.
Compare treatments taken by people with narcolepsy
Let’s build this page together! When you share what it’s like to have narcolepsy through your profile, those stories and data appear here too.
Got a question about living with narcolepsy? Members in the forum might have the answers.
Who has narcolepsy on PatientsLikeMe?
- 0 new patients joined this month
- 780 say narcolepsy is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 40 | |
| 30s | 101 | |
| 40s | 84 | |
| 50s | 101 | |
| 60s | 102 | |
| 70+ | 270 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 77 | |
| 20-29 years | 30 | |
| 30-39 years | 46 | |
| 40-49 years | 42 | |
| 50-59 years | 31 | |
| 60-69 years | 25 | |
| 70+ years | 28 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 213 | |
| Female | 1,096 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 673 | |
| Not Diagnosed | 44 |