Osteogenesis imperfecta
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is osteogenesis imperfecta?
Osteogenesis imperfecta is a genetic disorder. The term means imperfect bone formation and people with this condition have bones that break easily, often from mild trauma or with no apparent cause. Genetic factors are increasingly being used to define the different forms of osteogenesis imperfecta.
Common symptoms reported by people with osteogenesis imperfecta
Treatments taken by people for osteogenesis imperfecta
Let’s build this page together! When you share what it’s like to have osteogenesis imperfecta through your profile, those stories and data appear here too.
Got a question about living with osteogenesis imperfecta? Members in the forum might have the answers.
Compare treatments taken by people with osteogenesis imperfecta
Let’s build this page together! When you share what it’s like to have osteogenesis imperfecta through your profile, those stories and data appear here too.
Got a question about living with osteogenesis imperfecta? Members in the forum might have the answers.
Who has osteogenesis imperfecta on PatientsLikeMe?
- 0 new patients joined this month
- 38 say osteogenesis imperfecta is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 5 | |
| 40s | 4 | |
| 50s | 6 | |
| 60s | 4 | |
| 70+ | 7 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 3 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 13 | |
| Female | 41 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 21 | |
| Not Diagnosed | 0 |