Chronic pelvic pain syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is chronic pelvic pain syndrome?

Chronic pelvic pain is pain to the area below the belly button encompassing the sex organs. The cause of the pain is varied and can be related to injury to the nerves and muscles in the area or related to underlying conditions such as endometriosis, ovarian cysts, urinary tract infections, etc.

Common symptoms reported by people with chronic pelvic pain syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for chronic pelvic pain syndrome

Let’s build this page together! When you share what it’s like to have chronic pelvic pain syndrome through your profile, those stories and data appear here too.

Got a question about living with chronic pelvic pain syndrome? Members in the forum might have the answers.

Compare treatments taken by people with chronic pelvic pain syndrome

Let’s build this page together! When you share what it’s like to have chronic pelvic pain syndrome through your profile, those stories and data appear here too.

Got a question about living with chronic pelvic pain syndrome? Members in the forum might have the answers.

Who has chronic pelvic pain syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 171 say chronic pelvic pain syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 5
30s 23
40s 28
50s 28
60s 24
70+ 71
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 10
30-39 years 6
40-49 years 8
50-59 years 9
60-69 years 6
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 90
Female 248

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 134
Not Diagnosed 34

These charts show data from chronic pelvic pain syndrome patients who have completed their condition history
Last updated: