Pulmonary fibrosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Bryan explains in this video.

What is pulmonary fibrosis?

Pulmonary fibrosis is a chronic, progressive fibrosing interstitial pneumonia of unknown cause and results in the lungs becoming thick and stiff, or scarred, over time. PF may be caused by medications, exposures, or underlying diseases of the autoimmune system.

Common symptoms reported by people with pulmonary fibrosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for pulmonary fibrosis

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Compare treatments taken by people with pulmonary fibrosis

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Who has pulmonary fibrosis on PatientsLikeMe?

  • 0 new patients joined this month
  • 7236 say PF is their primary condition

Age
Age Proportion # of patients
<20 0
20s 224
30s 621
40s 587
50s 651
60s 624
70+ 1726
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 92
20-29 years 105
30-39 years 103
40-49 years 101
50-59 years 106
60-69 years 94
70+ years 129

Distribution of sex

Sex
Sex Proportion # of patients
Male 3532
Female 4533

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2077
Not Diagnosed 144

These charts show data from PF patients who have completed their condition history
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