Primary lateral sclerosis

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What is primary lateral sclerosis?

Primary lateral sclerosis (PLS) is a rare neuromuscular disease characterized by progressive muscle weakness in the voluntary muscles. PLS belongs to a group of disorders known as motor neuron diseases.

Common symptoms reported by people with primary lateral sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for primary lateral sclerosis

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Got a question about living with primary lateral sclerosis? Members in the forum might have the answers.

Compare treatments taken by people with primary lateral sclerosis

Let’s build this page together! When you share what it’s like to have primary lateral sclerosis through your profile, those stories and data appear here too.

Got a question about living with primary lateral sclerosis? Members in the forum might have the answers.

Who has primary lateral sclerosis on PatientsLikeMe?

  • 0 new patients joined this month
  • 831 say PLS is their primary condition

Age
Age Proportion # of patients
<20 0
20s 9
30s 67
40s 66
50s 65
60s 77
70+ 157
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 45
20-29 years 34
30-39 years 44
40-49 years 31
50-59 years 29
60-69 years 23
70+ years 18

Distribution of sex

Sex
Sex Proportion # of patients
Male 307
Female 452

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 378
Not Diagnosed 83

These charts show data from PLS patients who have completed their condition history
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