Primary biliary cholangitis

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What is primary biliary cholangitis?

Primary biliary cholangitis (PBC), previously referred to as primary biliary cirrhosis, is a chronic disease of the small intrahepatic bile ducts that is characterized by progressive bile duct damage and eventual loss.

Common symptoms reported by people with primary biliary cholangitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for primary biliary cholangitis

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Got a question about living with primary biliary cholangitis? Members in the forum might have the answers.

Compare treatments taken by people with primary biliary cholangitis

Let’s build this page together! When you share what it’s like to have primary biliary cholangitis through your profile, those stories and data appear here too.

Got a question about living with primary biliary cholangitis? Members in the forum might have the answers.

Who has primary biliary cholangitis on PatientsLikeMe?

  • 0 new patients joined this month
  • 161 say primary biliary cholangitis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 8
30s 24
40s 13
50s 27
60s 16
70+ 49
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 7
30-39 years 9
40-49 years 5
50-59 years 7
60-69 years 7
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 29
Female 229

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 134
Not Diagnosed 9

These charts show data from primary biliary cholangitis patients who have completed their condition history
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