Primary sclerosing cholangitis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is primary sclerosing cholangitis?
Primary sclerosing cholangitis is a chronic, autoimmune inflammatory liver disorder characterized by narrowing and scarring of the lumen of the bile ducts. It is often seen in patients with ulcerative colitis.
Common symptoms reported by people with primary sclerosing cholangitis
Treatments taken by people for primary sclerosing cholangitis
Let’s build this page together! When you share what it’s like to have primary sclerosing cholangitis through your profile, those stories and data appear here too.
Got a question about living with primary sclerosing cholangitis? Members in the forum might have the answers.
Compare treatments taken by people with primary sclerosing cholangitis
Let’s build this page together! When you share what it’s like to have primary sclerosing cholangitis through your profile, those stories and data appear here too.
Got a question about living with primary sclerosing cholangitis? Members in the forum might have the answers.
Who has primary sclerosing cholangitis on PatientsLikeMe?
- 0 new patients joined this month
- 83 say primary sclerosing cholangitis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 8 | |
| 30s | 13 | |
| 40s | 9 | |
| 50s | 11 | |
| 60s | 9 | |
| 70+ | 28 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 6 | |
| 20-29 years | 2 | |
| 30-39 years | 2 | |
| 40-49 years | 1 | |
| 50-59 years | 4 | |
| 60-69 years | 3 | |
| 70+ years | 5 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 59 | |
| Female | 80 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 75 | |
| Not Diagnosed | 4 |