Pyroluria syndrome
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What is pyroluria syndrome?
Pyroluria Syndrome is characterized as an abnormality in hemoglobin synthesis resulting in an excretion of pyrrole compound in the urine. This may be associated with other mental and physical conditions. There is a lack of agreement about this condition within the medical community.
Common symptoms reported by people with pyroluria syndrome
Treatments taken by people for pyroluria syndrome
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Compare treatments taken by people with pyroluria syndrome
Let’s build this page together! When you share what it’s like to have pyroluria syndrome through your profile, those stories and data appear here too.
Got a question about living with pyroluria syndrome? Members in the forum might have the answers.
Who has pyroluria syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 3 say pyroluria syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 1 | |
| 40s | 2 | |
| 50s | 3 | |
| 60s | 1 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 2 | |
| 30-39 years | 0 | |
| 40-49 years | 1 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 7 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 5 | |
| Not Diagnosed | 1 |