Tourette syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Tourette syndrome?

Tourette syndrome is an inherited neurodevelopmental disorder with onset in childhood, characterized by the presence of multiple physical (motor) tics and at least one vocal (phonic) tic; these tics characteristically wax and wane.

Common symptoms reported by people with Tourette syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Tourette syndrome

Let’s build this page together! When you share what it’s like to have Tourette syndrome through your profile, those stories and data appear here too.

Got a question about living with Tourette syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Tourette syndrome

Let’s build this page together! When you share what it’s like to have Tourette syndrome through your profile, those stories and data appear here too.

Got a question about living with Tourette syndrome? Members in the forum might have the answers.

Who has Tourette syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 81 say Tourette syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 5
30s 13
40s 11
50s 13
60s 10
70+ 44
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 8
30-39 years 5
40-49 years 4
50-59 years 7
60-69 years 5
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 66
Female 93

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 80
Not Diagnosed 10

These charts show data from Tourette syndrome patients who have completed their condition history
Last updated: