Von Willebrand disease
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is von Willebrand disease?
von Willebrand disease is an hereditary or acquired bleeding disorder characterized by a deficiency of the von Willebrand factor resulting in platelet dysfunction. The von Willebrand factor plays an important role in blood clotting.
Common symptoms reported by people with von Willebrand disease
Treatments taken by people for von Willebrand disease
Let’s build this page together! When you share what it’s like to have von Willebrand disease through your profile, those stories and data appear here too.
Got a question about living with von Willebrand disease? Members in the forum might have the answers.
Compare treatments taken by people with von Willebrand disease
Let’s build this page together! When you share what it’s like to have von Willebrand disease through your profile, those stories and data appear here too.
Got a question about living with von Willebrand disease? Members in the forum might have the answers.
Who has von Willebrand disease on PatientsLikeMe?
- 0 new patients joined this month
- 43 say von Willebrand disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 4 | |
| 30s | 6 | |
| 40s | 5 | |
| 50s | 10 | |
| 60s | 11 | |
| 70+ | 18 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 7 | |
| 20-29 years | 6 | |
| 30-39 years | 3 | |
| 40-49 years | 3 | |
| 50-59 years | 3 | |
| 60-69 years | 1 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 13 | |
| Female | 89 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 63 | |
| Not Diagnosed | 5 |