Vulvodynia
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
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What is vulvodynia?
Vulvodynia is a complex pain syndrome with unknown etiology, characterized by constant or intermittent generalized vulvar pain or localized burning sensations in the vestibule area when pressure is applied. Treatment is directed towards alleviating symptoms
Common symptoms reported by people with vulvodynia
Treatments taken by people for vulvodynia

Let’s build this page together! When you share what it’s like to have vulvodynia through your profile, those stories and data appear here too.
Got a question about living with vulvodynia? Members in the forum might have the answers.
Compare treatments taken by people with vulvodynia

Let’s build this page together! When you share what it’s like to have vulvodynia through your profile, those stories and data appear here too.
Got a question about living with vulvodynia? Members in the forum might have the answers.
Who has vulvodynia on PatientsLikeMe?
- 0 new patients joined this month
- 81 say vulvodynia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 6 | |
| 30s | 15 | |
| 40s | 18 | |
| 50s | 13 | |
| 60s | 15 | |
| 70+ | 37 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 15 | |
| 20-29 years | 5 | |
| 30-39 years | 6 | |
| 40-49 years | 5 | |
| 50-59 years | 7 | |
| 60-69 years | 6 | |
| 70+ years | 2 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1 | |
| Female | 168 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 72 | |
| Not Diagnosed | 18 |