5 patient evaluations for Diaphragm Pacing Implant taken for the purpose of 'amyotrophic lateral sclerosis'

26 members have decided to share their profiles only with other members of PatientsLikeMe.

Jul 15, 2018 (Started Aug 13, 2008)

  • Effectiveness
    Major (for Participate in clinical trial)
  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (difficulty speaking when machine is on)
  • Adherence
    Never taken as prescribed
  • Burden
    Somewhat hard to take
Dosage: 90 min Daily
Side effects: difficulty speaking when machine is on

May 22, 2018 (Started Aug 13, 2008)

  • Effectiveness
    Major (for Participate in clinical trial)
  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 90 min Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Side effects: difficulty speaking when machine is on

Jan 1, 2012 (Started Aug 13, 2008)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 90 min Daily
Side effects: difficulty speaking when machine is on

Oct 28, 2009 (Started Aug 13, 2008)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 90 min Daily
Side effects: difficulty speaking when machine is on

Apr 4, 2009 (Started Aug 13, 2008)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 90 min Daily
Side effects: difficulty speaking when machine is on

Jan 27, 2009 (Started Aug 13, 2008)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (difficulty speaking when machine is on)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 90 min Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly
Side effects: difficulty speaking when machine is on

  • 5 helpful marks

Apr 22, 2014 (Started Apr 11, 2012)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 10 hr Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly

Dec 3, 2012 (Started Apr 11, 2012)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (breathing difficulty, difficulty speaking when machine is on, anxious mood)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 14 hr Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly

Aug 30, 2012 (Started Apr 11, 2012)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (breathing difficulty, difficulty speaking when machine is on, anxious mood)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 23 hr Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly

Jun 18, 2012 (Started Apr 11, 2012)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (breathing difficulty, difficulty speaking when machine is on, anxious mood)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 16 hr Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly

Apr 24, 2012 (Started Apr 11, 2012)

  • Effectiveness
    None (for amyotrophic lateral sclerosis)
  • Side effects
    Moderate (breathing difficulty, difficulty speaking when machine is on, anxious mood)
  • Adherence
    Usually
  • Burden
    Somewhat hard to take
Dosage: 16 hr Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly

  • 4 helpful marks

Sep 30, 2011 (Started Oct 29, 2010)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 12 hr Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.

Nov 30, 2010 (Started Oct 29, 2010)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 12 hr Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.

  • 6 helpful marks

Dec 28, 2009 (Started Jun 06, 2008)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 12 hr Daily

Jan 14, 2009 (Started Jun 06, 2008)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 12 hr Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.

  • 3 helpful marks

Jan 14, 2009 (Started Dec 05, 2007)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.

Sep 17, 2008 (Started Dec 05, 2007)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: Daily

  • 7 helpful marks
Last updated:
Showing 5 of 5 patient evaluations for Diaphragm Pacing Implant