What is Fingolimod?

Category: Prescription Drugs

Most popular types: Gilenya

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Fingolimod is used to treat relapsing forms of multiple sclerosis (MS) by decreasing the number of MS relapses, or periods of time with worsening of symptoms.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Multiple sclerosis 5059 681
Fever/chills 3 0
Participate in clinical trial 3 4
Amyotrophic lateral sclerosis 1 1
Balance problems 1 1

Show all 22 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 99
Moderate 68
Mild 135
None 394

Commonly reported side effects and conditions associated with Fingolimod

Side effect Patients Percentage
Headaches 26
Fatigue 25
Elevated liver enzymes 14
Nausea 14
Heart rate low (bradycardia) 12
Hair loss 11

Show all 151 reported side effects

Why patients stopped taking Fingolimod

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 118
Doctor's advice 102
Did not seem to work 94
Other 65
Personal research 13
Expense 9
Change in health plan coverage 5
Course of treatment ended 4
See all 290 patients who've stopped taking Fingolimod

Duration

Stopped taking Fingolimod

Duration Patients Percentage
Less than 1 month 34
1 - 6 months 62
6 months - 1 year 55
1 - 2 years 61
2 - 5 years 50
5 - 10 years 10
Adherence
Adherence Evaluations Percentage
Always 627
Usually 34
Sometimes 4
Never taken as prescribed 31
Burden
Burden Evaluations Percentage
Very hard to take 11
Somewhat hard to take 9
A little hard to take 39
Not at all hard to take 637
Cost per month
Cost per month Evaluations Percentage
$200+ 33
$100-199 22
$50-99 30
$25-49 68
< $25 349
Not specified 194

What people switch to and from

Patients started taking Fingolimod after stopping:

Treatment Patients Percentage
Glatiramer acetate (Copaxone) 80
Natalizumab (Tysabri) 59
Interferon beta-1a SubQ injection (Rebif) 48
Interferon beta-1a IM Injection (Avonex) 45
Dimethyl fumarate (Tecfidera) 39

Show all 18 treatments patients report switching from

Patients stopped taking Fingolimod and switched to:

Treatment Patients Percentage
Natalizumab (Tysabri) 38
Dimethyl fumarate (Tecfidera) 31
Ocrelizumab (Ocrevus) 26
Teriflunomide (Aubagio) 18
Glatiramer acetate (Copaxone) 11

Show all 16 treatments patients report switching to

Last updated:

38 patient evaluations for Fingolimod

Sep 21, 2017 (Started Aug 28, 2014)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Moderate (hair thinning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Mar 27, 2017 (Started Aug 28, 2014)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    Mild (hair thinning)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly

  • 0 helpful marks

Jan 5, 2017 (Started Dec 15, 2013)

  • Effectiveness
    Moderate (for relapse MS (exacerbation))
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks

Sep 30, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

Jun 9, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Moderate (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Cost: < $25 monthly

May 13, 2016 (Started Jul 01, 2013)

  • Effectiveness
    Can't tell (for multiple sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 0.5 mg Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 38 patient evaluations for Fingolimod