What is Mycophenolate mofetil?

Category: Prescription Drugs

Most popular types: CellCept Myfenax

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Mycophenolate is an immunosuppressant agent that may be used for the prevention of organ rejection in patients receiving allogeneic renal, cardiac or hepatic transplants. Mycophenolate should be used concomitantly with cyclosporine and corticosteroids.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Systemic lupus erythematosus 1906 84
Prevent organ rejection 812 95
Lupus nephritis 260 14
Neuromyelitis optica 97 26
Multiple sclerosis 69 29

Show all 108 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 42
Moderate 98
Mild 120
None 162

Commonly reported side effects and conditions associated with Mycophenolate mofetil

Side effect Patients Percentage
Diarrhea 37
Nausea 28
Fatigue 13
Headaches 8
Stomach pain 8
Hair loss 7

Show all 133 reported side effects

Why patients stopped taking Mycophenolate mofetil

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 99
Doctor's advice 92
Did not seem to work 52
Other 51
Course of treatment ended 21
Change in health plan coverage 5
Personal research 5
Expense 4
See all 251 patients who've stopped taking Mycophenolate mofetil

Duration

Stopped taking Mycophenolate mofetil

Duration Patients Percentage
Less than 1 month 25
1 - 6 months 57
6 months - 1 year 49
1 - 2 years 35
2 - 5 years 45
5 - 10 years 27
10 years or more 6
Adherence
Adherence Evaluations Percentage
Always 362
Usually 41
Sometimes 6
Never taken as prescribed 13
Burden
Burden Evaluations Percentage
Very hard to take 16
Somewhat hard to take 52
A little hard to take 86
Not at all hard to take 268
Cost per month
Cost per month Evaluations Percentage
$200+ 24
$100-199 20
$50-99 28
$25-49 32
< $25 154
Not specified 164

What people switch to and from

Patients started taking Mycophenolate mofetil after stopping:

Treatment Patients Percentage
Azathioprine (Imuran) 34
Methotrexate (Apo-Methotrexate) 27
Prednisone (Prednisone Intensol) 17
Hydroxychloroquine (Plaquenil) 14
Cyclophosphamide (Cytoxan) 6

Show all 29 treatments patients report switching from

Patients stopped taking Mycophenolate mofetil and switched to:

Treatment Patients Percentage
Azathioprine (Imuran) 14
Belimumab (Benlysta) 12
Methotrexate (Apo-Methotrexate) 11
Hydroxychloroquine (Plaquenil) 8
Cyclophosphamide (Cytoxan) 7

Show all 23 treatments patients report switching to

Last updated:

37 patient evaluations for Mycophenolate mofetil

Jan 9, 2019 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    Moderate (cluster headaches)
  • Adherence
    Usually
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

Apr 18, 2017 (Started Oct 23, 2016)

  • Effectiveness
    Major (for Sjogren's syndrome)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 1000 mg Twice daily
Cost: < $25 monthly

  • 0 helpful marks

Dec 8, 2016 (Started Jun 01, 2000)

  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3000 mg Daily

  • 0 helpful marks

Oct 31, 2016 (Started Dec 01, 2005)

  • Effectiveness
    Major (for kidney transplant)
  • Effectiveness
    Major (for Prevent organ rejection)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 1000 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 37 patient evaluations for Mycophenolate mofetil