What is Pirfenidone?

Category: Prescription Drugs

Most popular types: Esbriet Pirfenex IPF Phase III ASCEND (pirfenidone) Show all

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Pirfenidone is an oral medication used for the treatment of idiopathic pulmonary fibrosis (IPF). The exact way this drug works is not yet fully understood, but it is believed to help fight the fibrosis and inflammation that lead to the progression of IPF.

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Idiopathic pulmonary fibrosis 1136 230
Asbestosis 1 0
Feels like i am suffocating 1 0
Shortness of breath (dyspnea) 1 0
Support immune health 1 0

Show all 7 reasons taken


  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 40
Moderate 51
Mild 92
None 51

Commonly reported side effects and conditions associated with Pirfenidone

Side effect Patients Percentage
Decreased appetite 121
Indigestion 101
Nausea 100
Abdominal pain 74
Headaches 74
Rashes (redness, swelling) 65

Show all 64 reported side effects

Why patients stopped taking Pirfenidone

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 29
Doctor's advice 15
Did not seem to work 9
Other 3
Course of treatment ended 1
See all 41 patients who've stopped taking Pirfenidone

Duration

Stopped taking Pirfenidone

Duration Patients Percentage
Less than 1 month 5
1 - 6 months 13
6 months - 1 year 9
1 - 2 years 10
2 - 5 years 2
Adherence
Adherence Evaluations Percentage
Always 182
Usually 29
Sometimes 5
Never taken as prescribed 18
Burden
Burden Evaluations Percentage
Very hard to take 19
Somewhat hard to take 57
A little hard to take 55
Not at all hard to take 103
Cost per month
Cost per month Evaluations Percentage
$200+ 29
$100-199 4
$50-99 3
$25-49 10
< $25 95
Not specified 93

What people switch to and from

Patients started taking Pirfenidone after stopping:

Treatment Patients Percentage
Nintedanib (Ofev) 14
Acetylcysteine (Mucinac) 2
Pirfenidone (Esbriet) 2
ALS Phase 2 Study Creatine/Tamoxifen Clinical Trial 1
Azathioprine (Imuran) 1

Show all 10 treatments patients report switching from

Patients stopped taking Pirfenidone and switched to:

Treatment Patients Percentage
Nintedanib (Ofev) 29
Oxygen therapy 2
Pirfenidone (Esbriet) 2
Vitamin B (Stress Vitamin B) 1
Vitamin B Complex (Vitamin B Super Complex) 1
Last updated:

2 patient evaluations for Pirfenidone

Dec 15, 2017 (Started Feb 06, 2016)

  • Effectiveness
    None (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (cough, shortness of breath with exertion, constant hunger)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

May 23, 2017 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (cough, shortness of breath with exertion, constant hunger)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

Feb 3, 2017 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (cough, shortness of breath with exertion, constant hunger)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

Jan 28, 2017 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (cough, shortness of breath with exertion, constant hunger)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

Sep 29, 2016 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (cough, shortness of breath with exertion, constant hunger)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
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Cost: < $25 monthly

Jul 24, 2016 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Moderate (cough, shortness of breath with exertion, constant hunger)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Cost: < $25 monthly

Feb 20, 2016 (Started Feb 06, 2016)

  • Effectiveness
    Can't tell (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (cough, shortness of breath with exertion, constant hunger)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 267 mg Three times daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly

  • 1 helpful mark

May 27, 2015 (Started Nov 11, 2012)

  • Effectiveness
    Moderate (for idiopathic pulmonary fibrosis)
  • Side effects
    Moderate (exhaustion)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Dosage: 4 mg Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: $200+ monthly

Oct 13, 2014 (Started Nov 11, 2012)

  • Effectiveness
    Major (for idiopathic pulmonary fibrosis)
  • Side effects
    Mild (exhaustion)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 4 mg Daily
Cost: $200+ monthly

Nov 26, 2013 (Started Nov 11, 2012)

  • Effectiveness
    Major (for idiopathic pulmonary fibrosis)
  • Side effects
    Moderate (exhaustion)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 mg Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: $200+ monthly

  • 4 helpful marks
Last updated:
Showing 2 of 2 patient evaluations for Pirfenidone