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What is Riluzole?

Category: Prescription Drugs

Most popular types: Rilutek Riluzole (oral film) Teglutik (oral solution)

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Riluzole is a drug used to treat amyotrophic lateral sclerosis (ALS). Riluzole does not cure ALS or improve symptoms, but may extend survival or the time to tracheostomy.

See patients taking Riluzole

Reported purpose & perceived effectiveness
Purpose Patients Evaluations Perceived Effectiveness
Amyotrophic lateral sclerosis 5346 1177
Primary lateral sclerosis 100 34
Progressive muscular atrophy 75 41
General health 15 9
Stiffness/spasticity 9 3
Muscle twitching (fasciculations) 8 4

Show all 23 reasons taken

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
See all 6145 patients that have taken Riluzole

Side effects

Side effects as an overall problem

Side effects as an overall problem
Severity Evaluations Percentage
Severe 93
Moderate 113
Mild 172
None 862

Commonly reported side effects and conditions associated with Riluzole

Side effect Patients Percentage
Fatigue 54
Nausea 37
Elevated liver enzymes 24
Tiredness 21
Stomach pain 14
Abdominal pain 9

Show all 120 reported side effects

Why patients stopped taking Riluzole

Multiple reasons could be selected

Reason Patients Percentage
Side effects too severe 255
Did not seem to work 215
Expense 94
Doctor's advice 84
Other 67
Personal research 59
Change in health plan coverage 16
Course of treatment ended 13
See all 579 patients who've stopped taking Riluzole

Duration

Stopped taking Riluzole

Duration Patients Percentage
Less than 1 month 89
1 - 6 months 171
6 months - 1 year 73
1 - 2 years 105
2 - 5 years 98
5 - 10 years 22
10 years or more 7
Adherence
Adherence Evaluations Percentage
Always 1022
Usually 102
Sometimes 30
Never taken as prescribed 86
Burden
Burden Evaluations Percentage
Very hard to take 38
Somewhat hard to take 109
A little hard to take 204
Not at all hard to take 889
Cost per month
Cost per month Evaluations Percentage
$200+ 115
$100-199 53
$50-99 85
$25-49 128
< $25 444
Not specified 415

What people switch to and from

Patients started taking Riluzole after stopping:

Treatment Patients Percentage
Intravenous Immunoglobulin (IVIG) (Gammaglobulin (IVIg)) 1
Lunasin (Lunasin Duke Virtual Trial) 1
Prednisone (Prednisone Intensol) 1

Patients stopped taking Riluzole and switched to:

Treatment Patients Percentage
Edaravone (Radicava) 3
Baclofen (Mylan-Baclofen) 2
Duloxetine (Cymbalta) 1
Last updated:

109 patient evaluations for Riluzole

Sort by: Most recent

Jan 5, 2019 (Started Aug 07, 2018)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Usually
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly

Aug 7, 2018 (Started Aug 07, 2018)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 50 mg Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly
  • 0 helpful marks

Feb 15, 2018 (Started Dec 15, 2017)

  • Effectiveness
    Moderate (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
  • 0 helpful marks

Jan 15, 2018 (Started Jan 01, 2002)

  • Effectiveness
    Slight (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 100 mg Daily
Advice & Tips: Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Phasellus faucibus turpis sed mi maximus mattis.
Cost: < $25 monthly
  • 0 helpful marks
Last updated:
Showing 3 of 109 patient evaluations for Riluzole